Dynamic Disabilities

Have you ever wondered why someone with a disability can seem fine one moment and not the next?

A dynamic disability is a condition that does not stay the same from day to day, or even hour to hour. Instead of having a steady level of ability or limitation, a person’s symptoms can shift in ways that are often unpredictable. One day, or even one part of the day, they may function fairly well. At another time, the same person may struggle with pain, fatigue, weakness, dizziness, or cognitive fog. This is not inconsistency or a lack of effort. It is the natural pattern of a body that does not regulate itself in a stable way.

In everyday life, this can look confusing to others. A person might wake up in the morning stiff and in significant pain, improve slightly as the day goes on, and then become completely exhausted by midafternoon. On another day, they might be able to run a few errands or meet a friend for lunch, but the next day they may be unable to get out of bed or drive safely. Someone might walk into a store on their own, only to need to sit down or leave early twenty minutes later because their symptoms suddenly worsen. To an outside observer, it can look like they are fine one minute and not fine the next, but what is really happening is a normal fluctuation in their condition.

These changes are often influenced by things that are not visible to others. Pain levels can rise and fall. Fatigue can build quickly, especially after activity. Environmental factors like heat, cold, noise, or stress can make symptoms worse. Even something as simple as going out to lunch may come with a cost, such as needing to rest for the remainder of the day or the following day. Many people with dynamic disabilities carefully plan their activities, knowing that doing one thing may mean they are unable to do something else later.

Because of this, people with dynamic disabilities are often misunderstood. Others may say, “You were able to do that yesterday,” or “You seemed fine earlier,” without realizing that ability is not consistent. Many of these conditions are also invisible, which adds to the confusion. A person may look completely fine on the outside while dealing with significant internal symptoms. This can lead to unfair assumptions that they are exaggerating, unreliable, or choosing when to function, when in reality they are constantly adjusting to what their body will allow at any given moment.

Living with a dynamic disability means living without a predictable baseline. Each day requires reassessing what is possible, making decisions based on current symptoms, and often dealing with the frustration of plans that have to change. It is not about what a person wants to do, but what their body is capable of doing in that moment. Understanding this can make a meaningful difference in how we respond to and support people whose abilities are not the same from one day to the next.

Author: Jan Mariet

An avid writer, former teacher, and ornithological enthusiast, Jan Mariet blogs about her life journey with psoriatic arthritis, ankylosing spondylitis, congenital hip dysplasia, and her battle with cancer at janmariet.com.

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